ME/CFS Patient Memorial : Remembering Those Who Have Passed Away

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  • Editor
| January 12, 2006 | Permanent Link
One of our regular Sleepydust Forum members, Amanda, kindly let us know about the memorial list by the National CFIDS Foundation:

(...) The United States National Institutes of Heath are not keeping track of the morbidity and mortality rates, although many have died and many more will if more is not done. The Centers for Disease Control and Prevention claim there have not been deaths reported to them.

(...) Many of these people died of secondary illnesses attributed to CFIDS/ME. Medical doctors have pointed out that excruciating pain is the foremost reason that others have chosen to take their own lives. The majority of these patients did not have the medical care they needed; they suffered unremitting pain with little hope of relief or comfort. We acknowledge their suffering and hope that they have not died in vain.

-- The National CFIDS Foundation --


To read the memorial list, click here...

It is also worth bearing in mind that mortality rates in ME/CFS are in the minority and that recovery is possible. For more information about recovering from ME/CFS click here...

Thank you to Amanda who let us know about this list.

Claire
Editor of Sleepydust